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I am a post-mastectomy woman who believes our feelings need voice in order to be recognized, respected, and of use.
Sep 29, 2025
I had a mastectomy in 1998, and then chemo.
I'll never forget the day that I was told I would have to have a mastectomy. My reaction to the words was total denial.
[On her mastectomy:] Pity is delicious. I was crazy about the pity I got. It was the best kind, too. I did not get, nor did I want, the drooling, mewing kind. I preferred something more restrained but deep-felt. Quality pity.
One of my first thoughts I had when I started considering the mastectomy was, 'What am I going to look like?' And then, 'What will my husband think?
For me it was just more important to get the cancer out. With the double mastectomy I now have less than one per cent chance of getting it back, otherwise it was 20, 30 or 40 per cent chance and for me it wasn't worth it.
In my practice, the majority of mutation carriers choose mastectomy; however, for those without cancer, they have much more control over the timing. For younger women, we might wait until they have found a life partner, or until after childbearing. Older women who find out they carry a mutation have unwittingly escaped a large percentage of their risk, and therefore, the calculated future risk is not necessarily a daunting number.
[On her mastectomy:] Fact is, I'm the same car I always was, except now I have a dent in my fender.
My breast cancer was caught very early thanks to my doctor a wonderful woman named Elsie Giogi, who just recently passed away after practicing medicine into her 80's. At the time, she had suggested I go for a baseline mammogram before age 40 because I had fibrocystic breasts. The mammogram discovered a tiny tumor, and it was so small that they were able to take it out very easily. I had a lumpectomy. Unfortunately, they did miss a little of the cancer, and two years later I had a mastectomy. But hey, I'm here, I'm alive, and I'm going to live to be 100!
I write about nuclear tests in Refuge - "The Clan of One-Breasted Women." With so many of the women in my family being diagnosed with breast cancer, mastectomies led to one-breasted women. I believe it is the result of nuclear fallout.
One day, right after my mastectomy, I went for a walk in Central Park, and there was this mob of people blocking the road. I thought, 'Oh, great, now I'm stuck!' but then I suddenly realized that it was a breast cancer walk.
I do not feel any less of a woman. I feel empowered that I made a strong choice that in no way diminishes my femininity.
Options other than mastectomy include high risk surveillance and risk reduction. Surveillance is a combination of monthly self breast exam, annual mammography and whole breast screening ultrasound, annual breast MRI, and biannual clinical breast exam.
When they told me I needed a mastectomy, I thought of the thousands of luncheons and dinners I had attended where they slapped a name tag on my left bosom. I always smiled and said, 'Now, what shall we name the other one?' That would no longer be a problem.
I would like to take the stigma away. 'Mastectomy' the word seemed so scary to me at first. After doing research and seeing the advancements, the surgery has come a long way from 20 years ago. The results can be incredible.
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